Having nystagmus makes doing some activities incredibly challenging. Nonetheless, most people with nystagmus can and do lead normal, active lives. Many people with nystagmus thrive in a variety of settings and we are thrilled to share stories of inspiration that highlight some of the accomplishments people with nystagmus have made.
This page contains a few profiles and essays that we call Stories of Inspiration. These people are athletes, actors, musicians, doctors, young adults, and students. They identify challenges and do not let nystagmus keep them from achieving amazing goals. Some of the essays include personal tips and tricks to prosper with nystagmus and highlight what is possible with hard work, perseverance, and community support.
Their stories inspire us and we hope they inspire you too.
Connect with Others Living with Nystagmus
The American Nystagmus Network is here to help you connect with people who understand what you’re going through. Whether you’re a parent, an adult with nystagmus, a younger person with nystagmus, or a healthcare provider, there’s a place for you in our community.Join our online forums or Facebook group Attend our biennial conferenceShare your story to encourage othersSubscribe to our newsletter for updates and resources Get Involved with ANN
How can I share my story with nystagmus?
We'd love to hear your story. Please reach out to us at info@nystagmus.org and we will connect you with our volunteer media team.
Where can I find other stories of inspiration?
Our social media team posts essays on our Facebook, Instagram, and TikTok channels regularly and our web team shares those stories here. Be sure to follow, like, and share our content..
Am I the only one that struggles?
You are NOT alone!
Living with nystagmus may present challenges, but it also builds resilience, resourcefulness, and community. With the right tools and support, you, or your loved one, can live and thrive. Have questions or want to share your story? Please contact us or join our network of support today.
