The following are links to several professional societies and organizations that have compiled general information about nystagmus. The information will provide a general understanding of the condition that is useful to patients, parents, families, and anyone who would like to learn about nystagmus.
American Association for Pediatric Ophthalmology and Strabismus (AAPOS)
AAPOS is the leading organization of eye care professionals dedicated to the medical and surgical treatment of eye conditions in children and the management of strabismus in patients of all ages. Their mission is to advance the quality of children’s eye care, support education and research, and promote public awareness of pediatric eye diseases and disorders.
American Academy of Ophthalmology (AAO)
The AAO is the world’s largest association of eye physicians and surgeons, committed to advancing lifelong eye health. Through education, advocacy, and public outreach, the AAO supports ophthalmologists in delivering the highest quality care and helps inform the public about eye health, eye diseases, and treatment options.
American Optometric Association (AOA)
The AOA represents doctors of optometry and advocates for quality eye care and vision health. It supports optometrists through education, research, and policy efforts, while also helping the public better understand the importance of regular eye exams and the role of optometry in detecting and managing vision and eye health issues.
Nystagmus Information Packs
These Nystagmus Information Packs are aimed at patients with nystagmus, families, teachers, other professionals and people who would like to find out more about nystagmus. The documents seek to provide better information for people to explain nystagmus and their vision to others. The Nystagmus Information Pack has been developed by the University of Sheffield in the UK. As such, some of the information about schools and driving is not applicable to the US, but the majority of the information is useful.
Nystagmus Network UK Resources
The UK Nystagmus Network’s seeks to support people living with nystagmus. Their mission is to champion the cause of the community we support, to raise awareness of nystagmus, its impact and the interventions needed. The UK Nystagmus Network maintains a comprehensive resources page with many categories of nystagmus information.