1999 Conference
Cleveland, Ohio
The American Nystagmus Network held its first conference and meeting July 30 – 31, 1999 at the Embassy Suites Hotel in downtown Cleveland, Ohio. For many of us, this was our first opportunity to meet each other in person and it was such a thrill.
Our keynote speaker was Dr. Louis Dell’Osso, a research scientist specializing in Congenital Nystagmus. Dr. Dell’Osso has CN himself and gave a wonderful presentation explaining nystagmus waveform recordings and his experimental Tenotomy procedure.
Inaugural Meeting and Conference
Friday, July 30
- 4:00-5:00 Focus Groups: Adults, Teens, Parents of Children with Nystagmus
- 5:00-6:30 Social Hour
- 6:30-8:30 Welcome Dinner / Guest Speaker: Claire Entwistle of the Nystagmus Network UK
Saturday, July 31
- 10:00-11:00 Keynote Speaker: Dr. Louis Dell’Osso, PhD –Types of Infantile Nystagmus: Congenital and Latent Forms. Dr. Dell’Osso is a leading researcher of Nystagmus and has CN himself.
- 11:30-12:30 Luncheon and Guest Speaker: Vicky Vaught – Introducing the American Nystagmus Network: Goals and Purposes
- 1:00-2:00 George Crisci of Ulmer, Berne, LLP – The Americans With Disabilities Act
- 2:15-3:00 Break-Out Sessions
- Claire Entwistle talks about two books: Early Onset Nystagmus, A Parent’s Guide and Understanding Nystagmus
- Dr. Jennifer Hunt: Growing up with Nystagmus
- 3:15-4:15 Jen Hensil: Low Vision Rehabilitation and How It Can Be Helpful to the Nystagmus Patient
- 4:30-5:30 First Business Meeting of ANN, Inc