Links
The National Center for Biotechnology Information (NCBI) is a division of the National Library of Medicine (NLM) at the National Institutes of Health (NIH). NCBI’s mission is to develop new information technologies to aid in the understanding of fundamental molecular and genetic processes that control health and disease. More specifically, the NCBI has been charged with creating automated systems for storing and analyzing knowledge about molecular biology, biochemistry, and genetics; facilitating the use of such databases and software by the research and medical community; coordinating efforts to gather biotechnology information both nationally and internationally; and performing research into advanced methods of computer-based information processing for analyzing the structure and function of biologically important molecules.
MedGen is NCBI’s portal to information about conditions and phenotypes related to Medical Genetics. The link is to their MedGen report for nystagmus, which includes several categories of scholarly research papers on nystagmus.
IN-vision is a UK charity dedicated to increasing awareness of Infantile Nystagmus (IN) and furthering research that will one day lead to a cure. The link is to their Latest Research page which aims to collate the most important research papers and developments in the field to encourage support of researchers from around the globe.
The Research Unit for Nystagmus (RUN) was established in 2000 by Prof. Jon Erichsen and his colleagues with the aim of improving knowledge of nystagmus and its effects on vision and visual function. The research unit is primarily concerned with visual perception and visual performance in people with nystagmus, as well as how environmental factors affect the movements of the eyes and their vision.
Videos
A Story of Discovery and Change: What We Learned From Studying Nystagmus In Infancy and Childhood ‐ Dr. Richard Hertle, MD
This presentation will summarize decades of research and experience diagnosing and treating nystagmus in infancy and childhood.
Research Updates from Around the World – 2021
Learn what is new in the field of nystagmus research. Presenters from around the world will share their nystagmus research with conference attendees.
Part 1
Part 2
Research Updates from Around the World – 2019
This is a Facebook video, which will require you to sign in and be a member of the ANN FB Group.
A panel of 10 nystagmus researchers from around the world each provide a short overview of the original work they are doing to study nystagmus.
1-Lap of the Globe of Nystagmus Research – 2017
In this video, we take one lap around the world to survey various researchers and the work they are currently doing to investigate nystagmus. Several of these researchers will come to us by video to introduce themselves and describe their latest work.
Animal Models to Aid in our Understanding of Infantile Nystagmus
Dr. Linda McLoon from the University of Minnesota presents some of her basic research on nystagmus. A number of recent studies have suggested the children with albinism and nystagmus show evidence of slower maturation of the retina, which resulted in increased visual acuity over the early school years. We have made a number of observations that suggest, similar to what was described in the retina, that there is a slower maturation of the connections from the brain that control eye movements. We are working with animal models of nystagmus to determine how these maturational differences might be accelerated to decrease nystagmus and hopefully improve vision.
2011 Conference Keynote Presentation
Dr. Richard Hertle delivers the keynote presentation at the bi-annual American Nystagmus Network Conference.
