Documents
ANN’s guide to navigating your health insurance to make the most of your health plan.
Medical information card for those with nystagmus, so that the eye movements are not misinterpreted.
A research paper about how aspects of daily living are affected by nystagmus. The study was conducted by Rebecca McLean from the U. of Leicester in the UK, and published in the British Journal of Ophthalmology.
Links
- Eye Friendly Computing article from PC World magazine
- VisionAware – for independent living with vision loss
- Sight for Students – a VSP charity that provides free vision exams and glasses to low-income, uninsured children. The program operates nationally through a network of community partners who identify children in need and VSP network doctors who provide the eyecare services.
Videos
Using Technology
Presentation by Jim Conley on effectively using technology to ease living with nystagmus.
Tips & Tricks for Living with Nystagmus
Tips, tricks, and “hacks” for living with Nystagmus from the people who use tips and tricks to get along every day. The session covers tips at home, at work or school, and while traveling. It’s a discussion of both physical tools as well as some of the emotionl “hacks” and tools that can help cope with the condition, and how to get by in the broader world.
Tips for Living with Nystagmus 2017
James Rath and Jim Conley discuss everyday tips and trick for living with nystagmus in a lively discussion at the American Nystagmus Networks 2017 Conference.
Low Vision Resources and Options
In this session we examine various vision specialties and low vision resources that are available to parents and patients with nystagmus. Our goal will be to help you communicate effectively and efficiently with medical and non‐ medical partners and providers as you chart your course to navigate the best treatment, accommodations or other low vision resources. We’ll also leave time for Q&A to learn how Dr Siemsen deals with patients and families as they seek treatment from various eye‐related specialties at the Mayo clinic.
Assistive Technology for Nystagmus
Dr. Suleiman Alibhai gives a presentation on assistive technology for low vision at the 2011 ANN conference
Living with Nystagmus – How I see
In this video I describe my experience living with the eye condition Nystagmus, which means I have involuntary movements of the eyes. My brain compensates for it as best it can, so my world is reasonably still. But it does make it more difficult to focus on things. To read text, it has to be close to me or I have to enlarge it. And for things in the distance, I have to use a pocket telescope (a monocular) to see writing and other detail. It hasn’t stopped me living my life though, so I’m happy.
Adults with Nystagmus Discussion Panel 2019
This is a Facebook video, which will require you to sign in and be a member of the ANN FB Group.
A panel of adults with nystagmus answer questions from the audience. In this session we look for common themes, questions, challenges, and tools we all use to live our best lives. The discussion is open, honest, and a terrific way to gain perspectives from bonds with other participants.
Tips for Living with Nywtagmus 2019
This is a Facebook video, which will require you to sign in and be a member of the ANN FB Group.
The interactive session focusses on peer-to-peer coaching. It uncovers tips, strategies, and tools we use at home, at work, or at school, and while traveling to overcome some of the challenges in our daily lives. Participants often recall finding simple, yet life-altering techniques that will help reduce stress and raise productivity and satisfaction with many of life’s everyday tasks.
Adult Discussion Panel – 2021
A panel of adults with nystagmus will answer questions from the audience. In this session we will look for common themes, questions, challenges, and tools we all use to live our best lives. The discussion will be open, honest, and a terrific way to gain perspectives and form bonds with other participants that will last throughout the conference and beyond.
