Nystagmus Information Packs

This Nystagmus Information Packs are aimed at patients with nystagmus, families, teachers, other professionals and people who would like to find out more about nystagmus. The documents seek to provide better information for people to explain nystagmus and their vision to others. The Nystagmus Information Pack has been developed by the University of Sheffield in the UK. As such, some of the information about schools and driving is not applicable to the US, but the majority of the information is useful.

Wobbly Eyes is a booklet to help explain nystagmus to a young child. It was created by the UK’s Nystagmus Network.

American Association for Pediatric Ophthalmology and Strabismus

An overview of nystagmus from pediatric ophthalmologists. Note that this page uses some somewhat outdated terms. “Infantile nystagmus” is currently pereferred over “congenital nystagmus”. Additionally, “sensory nystagmus” and “motor nystagmus” are no longer used by nystagmus experts, but may still be encountered in practice.

American Academy of Ophthalmology

General overview of nystagmus from ophthalmologists’ professional society. Note that the site uses the term “congenital” nystagmus, whereas the currently preferred term is “infantile” nystagmus.

American Optometric Association

General information from the professional society of optometrists.

Web MD

General information from the popular site for health information and tools for health management.