2025 ANN Conference
July 18-20,2025
Philadelphia, PA
Conference 2025 – July 18-20
Philadelphia, PA
Join us for an inspiring and informative event for those with nystagmus, or who have loved ones affected by nystagmus. Our conferences are a great way to network with others, foster community, and share resources. We look forward to an exciting program of presentations, discussions, and opportunities for connection as we work towards a brighter future for those living with nystagmus.
Book Your Lodging
The 2025 ANN Conference is being held at the Holiday Inn and Suites at the Drexelbrook Event Center. Click the button below to book your lodging.
Register for the Conference
Click the button below to fill out the registration form. Early bird registration ends May 1st, 2025
Conference Agenda
Kids Camp Nystagmus
The special program tailored specifically for young children, Camp Nystagmus is offered for children in grades pre-K to 8th grade. It is for children with nystagmus, siblings without nystagmus, and children of parents with nystagmus. The camp provides an opportunity for students to realize they are not alone. Everyone at camp is connected by nystagmus!
Confirmed Speakers to Date
Irene Gottlob, MD, Univ Doz, FRCOphth
Dr. Gotlob has a profound international career and a focus in nystagmus research. She is currently practicing at Cooper University Health Care in New Jersey as an Opthamologist and Professor of Neurology. Her prior positions include Professor and Chair in Ophthalmology at the University of Leicester and also Head of Department of Strabismus and Neuro-Ophthalmology at St. Gall, Switzerland.
Her clinical subspecialties are pediatric and neuro-ophthalmology. She has led a large nystagmus clinic offering investigations of eye movements, genetics, and retinal abnormalities including optical coherence tomography for all ages. She has published more than 210 articles and book chapters and is on the editorial board of several scientific journals. She is an enthusiastic teacher of clinical and research students and trainees.
Mr. Jay Self, BM FRCOphth PhD
Jay completed his higher specialist training in Paediatric Ophthalmology in Southampton and Manchester and his research training through an MRC Clinical Research Training Fellowship/PhD in Ophthalmic Molecular Genetics.
Jay’s research interests cover a range of disorders affecting vision in children including nystagmus, albinism, genetic disorders of the eye, amblyopia and paediatric cataract. His team combines expertise in genetics, bioinformatics, wet-lab modelling, eye-tracking and clinical trials.
Jay is an advisor to 4 vision charities, board member for two charities, Div B representative for the UHS hospital charity, and ambassador for one foundation. He works closely with the Royal College of Ophthalmologists (RCOphth) in a number of roles including member of the genomics working group, member of the paediatric and academic subcommittees, chair of various national masterclass training courses.
Jay and his team are passionate about translating research findings into clinical practice and improving the care for children with visual disorders by improving diagnostics, developing new treatments and ways of working and disseminating best practice.
Richard Hertle, M.D.
From a colleague on Dr. Hertle’s retirement:
Dr. Hertle has chosen to specialize in the most complex and challenging ophthalmic disorder which is nystagmus. This type of eye disorder can be very frustrating to the patient and the doctor in the same time and can cause major disability. While most eye doctors try to avoid treating patients with nystagmus, Dr. Hertle have chosen to challenge this disorder and treat these patients, coming up with different intricate surgical procedures, non-surgical treatments and cutting-edge research initiatives.
Throughout his career, Dr. Hertle was highly dedicated and committed to patient care and to advancing the frontiers of ophthalmic science, especially nystagmus research. He was a talented surgeon and a compassionate doctor who built trust and rapport with his patients. His professionalism instilled confidence in even the most nervous patients.
Monica Daibert-Nido, MD, CBO
Dr. Monica Daibert-Nido is an Ophthalmologist and Assistant Professor in the Department of Ophthalmology at the University of Toronto. She also serves as the educational lead for the Committee of Vision Rehabilitation at the Canadian Ophthalmological Society.
After completing a three-year fellowship in Low Vision Rehabilitation at the University of Toronto, Dr. Daibert-Nido has been practicing in Toronto since 2016. Her main research focuses on brain plasticity in low vision rehabilitation, covering areas such as biofeedback training on the micro perimeter, virtual reality stimulation for hemianopia, and the use of prism glasses in vision rehabilitation.
Dr. Daibert-Nido has published studies on vision rehabilitation with biofeedback for various conditions, including nystagmus, macular degeneration, and hemianopsia. She has also been involved in a study on photobiomodulation for age-related macular degeneration, exploring new technologies for improved patient outcomes.
A graduate of the University of Sao Paulo in Brazil in 1999, Dr. Daibert-Nido completed her medical residency at the Hospital das Clinicas, specializing in Pediatric Ophthalmology and Strabismus surgery. She has collaborated with the Low Vision Service at the University of Sao Paulo, contributing to research and teaching lecture
Sponsorship
Please help us fund this conference by approaching potential sponsors! We have created a draft sponsorship cover letter below that you can edit and customize. Also below are the sponsorship levels for the 2025 conference.
Sponsorship Cover Letter
The attached file is a Microsoft Word document that can be personalized.
Transportation Options from the Airport to the Conference Hotel
Uber, Taxi, Car Rental, SEPT bus and rail transit information.