ANN Resources

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ANN compiled resources for individuals with living with nystagmus in common settings and for their families, spouses, and friends. ANN is grateful to the Delta Gamma Foundation for their longstanding support to provide resources and hold “Camp Nystagmus.” Thank you!

This online resource library offers a comprehensive collection of nystagmus resources for anyone interested in learning more about nystagmus.

The American Nystagmus Network (ANN) is dedicated to improving the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research.

BOOKS ABOUT NYSTAGMUS

Version 1.0.0

Patricia's Story

By Roz Adekunle

ANN’s own Roz Adekunle has written a children’s book on confidence with low vision, Patricia’s Story.

Believing in yourself goes a long way. This story is about the journey of a young girl as she starts her first day in kindergarten. Patricia was born with nystagmus, an eye condition that affects her vision. Despite this condition, she does not let it affect her confidence and her ability to socialize and enjoy school.

 

glaserbook

All Children Have Different Eyes

Learn to Play and Make Friends....Starring Tommy with Nystagmus (wobbly eyes) and Wendy with Strabismus (crossed eyes)
“All Children Have Different Eyes” empowers children who have visual impairment to deal with their daily social challenges, such as how to respond to bullies, how to explain their condition confidently and how to handle mistakes responsibly. Activities in the back of the book give parents and teachers tools to develop these social competencies every day.
 
 
 
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Can I Tell You About Nystagmus?

By Nadine Neckles

In this friendly guide, a girl called Amber explains all about her ‘dancing eyes,’ or nystagmus. Amber explains how children with nystagmus might need to read, learn or play differently, and what their families, school and friends can do to help. She invites readers to learn the causes and symptoms, to help others understand the condition and help increase the self-esteem and confidence of those who have it.

Driving With Nystagmus

[VIDEO] Driving with Low Vision ‐ Dr. Henry Greene, OD, FAAO

Video Description: A diagnosis of nystagmus does not automatically make you ineligible to drive. In most states in the US, ...

[VIDEO] Driving with Nystagmus with Aida Weber

Aida Weber discusses various aspects of driving assessments for both patients with nystagmus as well as any other visual impediment ...

[VIDEO] Low Vision Driving – Dr. Scott Hearing

https://www.youtube.com/watch?v=AT1xQRJXIEg&t=1s Dr. Scott Hearing gives a presentation on driving with low vision at the 2013 ANN conference held in Orlando, ...

[VIDEO] Low Vision Driving – Chuck Huss

https://www.youtube.com/watch?v=RP5dvb92RbM&t=25s Presentation on low vision driving by Chuck Huss during ANN's 2011 Conference in Arlington, VA ...

Living With Nystagmus

[VIDEO] Workplace Navigation

Video Session on Workplace Tips and Tricks Resources supported by a generous grant from the Delta Gamma Foundation ...

Navigating Health Insurance

ANN’s guide to navigating your health insurance to make the most of your health plan. Resources supported by a generous ...

Tips for Living With Nystagmus

A series of videos from past ANN Conferences that discus the many ways to maneuver through life with nystagmus Using ...

Apps for the Visually Impaired

Smartphone apps that help make it easier to live in a world where we can't see as well as others ...

Nystagmus Medical ID Card

Medical information card for those with nystagmus, so eye movements are not misinterpreted. Resources supported by a generous grant from ...

Research Paper on Living with Nystagmus

A research paper about how aspects of daily living are affected by nystagmus. The study was conducted by Rebecca McLean ...

Nystagmus In A School Setting

Documents for Navigating Nystagmus in School

Slides answering many frequently asked questions about dealing with nystagmus in a school setting Chart highlighting the differences between an ...

The ABCs of IEPs

The ABCs of IEPs (and 504s) A teacher, administrator, and parent, Janine Rossi, M S discusses her own journey obtaining ...

IFSP / IEP / 504 PLANS

What Every Parent Should Know Discussion for parents and educators about how to talk to your school, and determine whether ...

Nystagmus in a School Setting – Evelyn Gonzalez

2017 Conference Presentation This session, from ANN's 2017 Conference in Minneapolis, Minnesota, explores navigating IEPs and 504s for students with ...

Nystagmus In The Workplace

Written Reference Material

The following written documents provide useful information about different aspects of nystagmus in the workplace. A Model of Successful Work ...

Treatments for Nystagmus

Resources for Managing Treatment

Links to several documents that provide information to help make informed choices on managing the treatment of nystagmus. Review article ...

For Friends and Spouses

Friends and Spouses

ANN’s guide for friends of people with nystagmus. ANN information card containing a basic description of nystagmus and about the ...