James Rath
James is a legally blind (Ocular Albinism and Nystagmus) film maker, director, actor, and Pokemon Master. His YouTube channel has over 25,000 subscribers and more than 1.6 million views. James’ videos explore his passion for technology, accessibility, and living on the spectrum of blindness. James’ breakout video “How Apple Saved My Life” resulted in James […]
ESSAY: Ed Chin
My Nystagmus Story I was diagnosed with congenital nystagmus at a very young age, and I have learned to live nystagmus over the course of my life. Initially, my ophthalmologist recommended glasses and strabismus surgery, which I underwent in the 8th grade. Before that, the strain on my eyes required me to take multiple breaks […]
ESSAY: Behind These Eyes
This essay is from a prospective medical student who has both albinism and INS. Her words and spirit will inspire and soothe those who have expressed concern for their children with INS. I HATE first impressions. When people first meet me, they stare bewilderingly into my blue eyes, not able keep up with the rapid […]
ESSAY: Anna Rojakovick
My name is Anna Rojakovick. I am twelve years old and have nystagmus. I am in the gifted program at Swift Creek Middle School. Even though I have nystagmus, it doesn’t hold me back. I was diagnosed with nystagmus as a baby. Honestly, sometimes I forget I have nystagmus. Some people think that your eyes […]
ESSAY: Rosalyn Adekunle
My Nystagmus Story One worry I used to have was learning, but I have been able to use many resources such as a touchscreen chromebook and upfront seating in class. Because of this I have been able to succeed in school and got a place in the CBG program at my middle school. CBG stands […]
Books
Order Book Patricia’s Story By Roz Adekunle ANN’s own Roz Adekunle has written a children’s book on confidence with low vision, Patricia’s Story. Believing in yourself goes a long way. This story is about the journey of a young girl as she starts her first day in kindergarten. Patricia was born with nystagmus, an eye condition […]
ESSAY: Alex Rojakovick
My Nystagmus Story One worry I used to have was learning, but I have been able to use many resources such as a touchscreen chromebook and upfront seating in class. Because of this I have been able to succeed in school and got a place in the CBG program at my middle school. CBG stands […]
[VIDEO] Workplace Navigation
Video Session on Workplace Tips and Tricks Resources supported by a generous grant from the Delta Gamma Foundation
Navigating Health Insurance
ANN’s guide to navigating your health insurance to make the most of your health plan. Resources supported by a generous grant from the Delta Gamma Foundation
Tips for Living With Nystagmus
A series of videos from past ANN Conferences that discus the many ways to maneuver through life with nystagmus Using Technology Presentation by Jim Conley on effectively using technology to ease living with nystagmus. Tips & Tricks for Living with Nystagmus Tips, tricks, and “hacks” for living with Nystagmus from the people who use tips […]