The following collection of links may provide additional information for Nystagmus patients and parents of Nystagmus children. Updated 10/09/2013.
Misc. Articles About Vision
- An interesting article on Eye Friendly Computing was recently published by PC World. Read the Article.
For Parents, Schools & Education Related Site
- The Daroff-Dell’Osso Ocular Motility Laboratory (OMLAB) Provides a weath of links to Nystagmus research as well as a patient information and education section.
- Reading Ally – Support Tools for Accessible Reading
- Information for Parents of School Children with Nystagmus
- IEP examples and education related links from the NOAH website
- Frequently Asked Questions
- Special Education – Wrightslaw web site – IDEA, IEPs, etc
- Special Education Process Explained – IDEA, IEPs, etc
- For parents of children with visual impairments Find videos, personal stories, events, news, and an online community that can offer tips and support from other parents of children who are blind or visually impaired.
- Accredited Online Colleges and Disability Education
Nystagmus Sites Around the World
- Nystagmus Network (U.K.)
- Nystagmus Network (U.K.) – Links to a variety of international sites
- Deutsches Nystagmus Netzwerk
- Nystagmus Aware Australia
- WikiSpaces page with links to additional information
- The National Organization for Albinism and Hypopigmentation (NOAH) – Nystagmus often occurs with albinism, ocular albinism (OA), and oculocutaneous albinism (OCA).
- Summary of genetic inheritance including dominant, recessive, and x-linked. Credit: Guy’s and St. Thomas’ Hospital (NHS U.K.)
- The Achromatopsia Network – network for individuals and families who are affected by the rare inherited nystagmus related vision disorder achromatopsia.
- United Cerebral Palsy Association – Some individuals with CP may also have nystagmus.
- The National Multiple Sclerosis Society – Some individuals with MS may acquire nystagmus.
- Nystagmus Webcast from Akron Children’s Hospital – Introduction to Eye Muscle Surgery: Expanding the Treatment for Nystagmus in Infancy and Childhood, September 8, 2011.
Low Vision Links
- Sightconnection.com – Various low vision aids.
- BiOptic Driving Network – Information on bioptic driving.
- Low Vision Driving Laws – State by State.
- The Low Vision Gateway – Information about low vision aids including magnifiers and bioptic lenses. Also contains a directory of low vision professionals.
- LOVNET, the Low-Vision Gateway “The Low Vision Gateway to the Internet is your starting point to the world’s resources for vision loss, vision-impairment, blindness, low vision aids and low vision rehabilitation services.”
- VisionAware – The Self Help Resource Center for Vision Loss”
- Computer Screen Magnifiers information
- Ocutech Low Vision Solutions – includes information on bioptics for low vision drivers
- Sight for Students – is a VSP charity that provides free vision exams and glasses to low-income, uninsured children. The program operates nationally through a network of community partners who identify children in need and VSP network doctors who provide the eyecare services.
American Professional Organizations
- American Academy of Ophthalmology
- American Association for Pediatric Ophthalmology and Strabismus – A “list of all full members of the American Association for Pediatric Ophthalmology and Strabismus. It includes members from the United States, Canada as well as international members. It is listed by geographical location in order of State, Province or Country. It may be selectively searched.” This is a good way to search for an ophthalmologist near you.
- National Eye Institute
- Optometrist Network – Special needs for children
- LightHouse International
Books on Nystagmus
- Purchase the book Early Onset Nystagmus: A Parent’s Guide or Wobbly Eyes from the UK Nystagmus Network site. These books have been extremely helpful to parents raising children with nystagmus. Books can be purchased with US dollars or English pounds. (links UPDATED 2/25/14)
- ANN’s own Edie Glaser has written 2 new books on Nystagmus, one aimed at children and one for adults. with an introduction by Dr. Richard Hertle. Click on either book to go to her website. In addition, she provides an interesting and useful page of low vision resources among other topics.