Rick has been a board member 11+ years. He currently serves as ANN President. He is married to Mona – former Newsletter Publisher and former BOD member. He has 4 children, Alec (19) has INS, Alec is a Sophomore at Virginia Tech – and triplets Austin, Matthew and Laura (16) they do not have INS. Rick works for Honeywell as a research/developer on ultra high strength fiber used mainly in ballistics protection applications.
Jim joined the board in 2011. Jim has nystagmus. He works for YouTube where he leads their Creator Education and Professional Certification programs. Jim has traveled extensively both for his job and for enjoyment and is happy to share tips and tricks for using technology to bring the world closer. Jim has an B.A. from Georgetown University and a Masters in Education from Harvard University. He has various hobbies including photography, writing and karaoke.
James “Tony” Fuhrer II is an Auditor and Certified Tax Examiner for St. Mary Parish Sales Tax Department. Tony is an avid golfer and hosted three Annual ANN Golf Classics. Soon after attending the 2009 ANN Conference Tony joined the ANN board and serves on the finance committee and has taken over responsibilities of Treasurer. Tony’s son James is affected by nystagmus.
Mike is a long time board member wearing a number of hats (which explains the lack of hair), including treasurer and webmaster. He is now servig as Assistant Treasurer. He has been on the Board since 2001 He was one of Dr. Hertle’s first adult patients during research trials at the National Institutes of Health in Bethesda, Maryland. Participation in the trials led him down the road to getting his driver’s license at age 50. In real life, he is a semi-retired systems engineer, spending 40 years in the IT field, the last 33+ with Northrop Grumman. He has an M.S in Technology Management from American University. He is married, lives in Herndon, VA, and has 3 daughters, one of whom made him a proud grandpa on Memorial Day, 2011 and a second one on May 7, 2014.
Roz is currently a retired Benefits and Learning Consultant. Teaching, facilitation and training are her passions. She has used her skills internationally and feels honored to have done so. She is married with two children. Her interests are reading, writing, community outreach and involvement with her church community.
Christine lives in South Eastern Pennsylvania with her husband and 3 sons. Her youngest son Connor is 12 years old and has Nystagmus due to Ocular Albinism. Connor was diagnosed with nystagmus at 10 weeks old. He has had 2 very successful eye surgeries to correct a rather significant head turn. After his diagnosis Christine found ANN online and attended a conference shortly after. She joined the board in 2003 because she was so impressed by the people she met there and the help and information she received from ANN. Christine served on the ANN board from 2003 – 2009 and is happy to be back on the board now again in 2011. She is a Registered Nurse and works at a major Insurance Company as a consultant. In her spare time she enjoys skiing, running, hiking and traveling with her family. She is also a very active volunteer for her son’s Boy Scout Troop.
JOHN D. CRANMER
John lives with his wife Tricia (a past BOD member) and sons Jack and Will in Moorestown, New Jersey a suburb of Philadelphia. Jack was diagnosed with INS at the age of 3 months and had surgery with Dr. Hertle at 18 months. John specializes in Real Estate, Land Use and Construction law at Archer & Greiner, PC. Prior to joining Archer & Greiner, John was General Counsel and Director of Property Management for a mid-sized developer of multi-family housing in the greater Philadelphia Area. John is an avid sailor and squash player. He is also on the Board of the New Jersey Apartment Association, NJAA Charitable Fund, Inc., Businesses Committed to Burlington County and Mordecai Land Trust, Inc.
Katherine joined ANN in 2008 and became a board member in 2011. She lives in Fort Mill, SC with her husband and two children. Katherine was diagnosed with Nystamus at the age of 9 weeks. She has a Bachelor of Science degree from North Carolina State University and an MBA from the University of North Carolina at Charlotte. She currently works as a financial analyst at Bank of America.
New Board Members/Directors 2013-2015
Gwen lives in Atlanta, GA with her husband and 10 month old son, Will. Will was diagnosed with nystagmus at 4 months old. Gwen found ANN following Will’s diagnosis and is serving her first term on the board. She works in market research for a consumer packaged goods company, and spends all of her free time discovering new, fun activities to do with her son.
Joe joined ANN as a lifetime member in 2007 after attending his first conference. Since then he has become interested in the nystagmus research, and in 2013 attended a research workshop organized by the Nystagmus Network in the UK. He himself is gifted with Infantile Nystagmus Syndrome, which provides endless wonder to those he meets. By day he is a mild-mannered scientist for the U.S. Navy. Joe earned a Bachelor’s and a Master’s degree in mechanical engineering and a Ph.D. in applied mechanics from the University of Connecticut. For the past 12 years he has worked at the Naval Undersea Warfare Center in Newport, RI. He performs basic research into the response of structures to underwater explosions. This mainly involves extensive computational simulations, but he has been known to blow things up underwater from time to time.
Evelyn, her husband, and four teenage children live in San Leandro, CA. Her oldest and youngest sons both have INS. Evelyn and her son Juan attended the 2011 and 2013 ANN conferences. Evelyn holds a degree in biology and worked in the field of cytogenetics for nearly a decade. She returned to graduate school and received a M.Div. degree. She then served for eight years as the Director of Youth and Young Adult Ministry for the Diocese of Oakland. Currently, she serves as a fundraiser and event planner supporting a number of nonprofit and community organizations. She is also a City of San Leandro Recreation and Parks Commissioner.
Larry Rochefort is a resident of Jupiter Florida where he lives with his wife Heidi and two children, Kyle (15) and Maggie (11). Larry is a practicing attorney in West Palm Beach Florida and works with the law firm of Akerman Senterfitt. He specializes in real estate litigation and is board certified in business litigation and has been practicing since 1988. Larry enjoys travelling and coaching youth sports. He is on the Board of Legal Aid Society of Palm Beach County. Larry’s son Kyle was born with nystagmus but is managing with daily life very well. Kyle just received his learners permit in Florida and is a very active athlete in high school.
Angie is an Associate Professor and Clinical Coordinator of Radiologic Technology at Louisiana State University Eunice. She resides in Lafayette, LA with her husband Jeff and son Jacob. She became involved with ANN after volunteering for the 4th Annual ANN Golf Classic in Patterson, LA. She states that meeting other children with Nystagmus and networking with other parents has completely changed her outlook on Nystagmus and has been a very rewarding experience. For fun Angie enjoys playing USTA tennis, being active in her profession by holding numerous offices and serving on several committees, volunteering with Louisiana Special Olympics, and spending time with family. Angie’s son Jacob (6) is affected by Nystagmus and is active in karate and cub scouts.
Cheryl has a 13 year old son, Peyton with Nystagmus. She is currently a stay-at-home mom. Cheryl has an accounting background and loves working in her yard.